It’s now Day 15 of Dad’s hospital stay. He received a testosterone shot yesterday to combat the effects of the chemo shot that he had in July. Maybe this will be the answer. Maybe not. The doctors have thrown out a couple of possible diagnoses, but won’t or can’t say for sure. One is called Jacob Creutzfeld Disease. He seems to have a lot of the symptoms associated with this disease. Some are still convinced that this is a drug problem. I guess only time will tell.
My sister and the boys met Joey and me at the St. Edwards Fair tonight. Jacob loved the rides. We all rode the Tilt-A-Whirl and Jacob laughed the whole time, saying he wanted to go faster. Jackson didn’t like it at all. He got real scared going down the giant slide. My sister put Jacob on her lap and Jackson right next to her. Jacob loved it, but Jackson was scared. I found out that I just don’t have the stomach anymore for those spinning rides! I love roller coasters, but keep me away from anything that goes around. Joey was such a good sport because he went on the kiddie rides with Jackson. There was an obstacle course that he actually liked himself. He said it was fun but he wanted to make sure people saw him holding on to Jackson. He didn't want anybody to think he was there by himself.
I'm just not sold on any of the diagnoses I've heard since the spinal tap came back clear. They're just guessing now. The symptoms are similar to Creutzfeld Jacob Disease (This is such a rare disease that I'm willing to discount the possibility) and Paraneoplastics Syndrome but they're also similar to stroke and a few other things. I think I'll be able to stay with him tomorrow night or Wednesday night.
I agree with Robbie. I went to that web-site, and I can see why that diagnosis is compelling, but if you put Dad's symptoms into a huge database that extracted possible causes, I think you would get a host of issues to look into.
The obvious one is still not being dealt with and I want that done. I am staying with Dad this Thursday. I had half a mind to tell Elizabeth, the scheduler, that I will be in only if his anti-psychotic drugs are eliminated. Give him some phenyl-barbitol as a sedative instead of the Seracol.
Of course, I will do anything that is needed, and the other day when I was driving home from the hospital I was behind a vehicle at a stop sign that had a bumper sticker "You'd better be right!" on it that gave me pause for thought. I know that everything is in divine order. If that looks like apathy, so be it.
I finished reading "The DaVinci Code" yesterday. It was a very good read.
just happened accross this site and would like to say our father died of CJD several years ago. the only sure way to say that is what he had is when post mortem tissue was sent to a federal lab in indiana and came back positive.
it seems dr's aren't 'allowed' to discuss this much as the govt strongly states that the human form disease does NOT exist here.
but, research. then go deeper and research again. form your own opinion as to the possibility your loved one has this disease.
basically for my dad, and others with it, it is untreatable and incurable, max duration 14 months.
in the UK there are government sites and public programs to help and assist 'victims' and their families, including funds to families in wrongful deaths (UK Red Cross re: tainted blood, and corneal transplants).
whatever is happening my heart goes out to you, your family and esp[ecially your dad.
yes it rare, but not so rare that it is more likely to be hit by lightening than get this disease.
jim